Autistic Spectrum Disorder

Am i alone in this or do even your own family misunderstand what your child is going through,never mind you!I have kept my sister up tp date on D progress :8shock :8shock etc,yet she doesnt understand the implications of it...She visited yesterday and could only say" she seems alright,and thats the most shes ever spoken to me!"I wasnt expecting tears,or flowers just for her to try and understand even my mum says that although shes her D and she luvs her she doesnt think she cares.....

my famliy are very much the same. sister in laws and sisters , are the worst oh our children are like that and he or she is not autisitc. it really drives me mad. because since when has my family or freinds known more than the professionals ie , doctors and the autism team and thomas's special needs teachers.

they say thomas can talk really well , i say yes but his laungage is very poor for his age and his speech is very immature for his age. then they are shocked when i say he is 3/4 years behind in speech and language and understanding.

familys are pains in the bottoms when it comes to understanding , they dont know. a thing well they think they do but they don't.

see you from kerry.

my sister-in-law has done some research and now try's to tell me what's wrong {:shaking still at least she cares :.)colors

But you are right most people don't understand the daily things we just deal with,

To think of it I am not sure I always understand it myself sometimes ;.aaargh

My DH is in semi-denial - he says 'they're just kids ..there is nothing wrong with them'.

My MiL (his mum!) was a bit shocked when she heard him say it - she is reasonably aware of what they are like - she is mad enough to have each child for up to a week in the summer hols ....without which I would not survive. :silly:

My Mother has no idea but then she has never done childcare! - she ALWAYS had someone (aupair, her parents etc) in the house to look after us until we were old enough to be sent away to school (boarding obviously)

My father is semi-aware ...I'm suppose to be trying to find him some reading matter/leaflets so he is more knowledgable - he is very aware that he's not sure how to react with them. My father is a great believer in RTFM.([size=18px]R[/size]ead[size=18px] T[/size]he [size=18px]F[/size]laming [size=18px]M[/size]anual ):study

I have no idea how my brother in Sweden views it but his wife (Swedish) is a SEN teacher and for my other brother, in Australia, his son aged 5 is 'High Level Autism' rather than Aspergers. (According to Aussie Drs you can't be Aspergers if you have communication problems - you are 'High Level Autism' instead)

But ,yes, family has no real idea of the day-to-day realities and just how difficult it is to organise non-family (grandparents in my case) childcare for anything. It is not simply paying someone but finding someone who is able to cope and prepared to do it. b/head

Louise

I have a pretty understand family, but they couldnt be any other way really my twins do act different.

A few years back though my mum did say my kids need a good smack. Well i told her what for and she never said it again.

She even helped me to fill out the Asperger form, because i wanted someone elses view point just incase i was seeing something that wasnt really there.

I had a neighbour that was really nasty and rude to me and the boys she just couldnt understand it, but shes moved now. I think we drove her away.

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hi,as i said my sister isnt very understanding,my brother tries his best he listens well,and my mum is great although shes 70 and calls aspergers all sorts of names.(auxers,asgingers! lol)Ds dad doesnt understand,he is more tolerant than before but for example takes the micky which is just how he is but D takes it all to heart,as she cant understand tried to tell him more about aspergers but i think in his head he knows im doing all i can for her and her siblings and knows i keep him informed,so he doesnt worry.

My family are the same. especially my dad..aspergers didnt exist in his day you know .

He understands they exist now, but he seems worried my son has it...like it is a disease or something . hard to explain what i mean, for me kyle is kyle...ASD or not..not like he suddenly caught it. My dad just needs to learn a bit more about it but because he is very set in his ways i dont know if he ever will. he dotes on kyle, he just thinks the things he does is naughty behaviour and it is very unstructured around my dad's house, which doesnt help ofc.

Thinking about it, my brother has some traits, he is now 38 and ofc if he does have it, it hasn't been diagnosed. he is definately 'different' and understands kyle to a tee! And my other brother was the first one to notice my kyle was a bit different. so i get the support from them, and Dad does try bless him

i think the thing is not many people know about the spectrum at all. i didnt know there was one till kyle has difficulties in school. and i never even heard of aspergers until Eugene was on Big Brother. I think people need to be much more aware as too many people just think its bad parenting or bad behaviour which it isn't. my son has good morals and is a lovely boy..he just has alot of behavioural difficulties which can be percieved as bad