ASD Forum

hello im new, im 28 years old i live with my partner and my three children. my partner has ADHD, my children are dale 9 (no disablitys), reece 5 who has significant speech and language delay, Adhd, possible fragile x, emotional and behavioural problems, my daughter alexandria has autisim and has siginfcant speech and language problems, poor expressive skills, little understanding of anything really and possible fragile x.

my partner cant cope and tends to always have something else to do and i have no family support. so school is my only break.

my son reece is in full time mainstream school, with full time keyworker, hes come a long way. his school is very in tune with his needs. he mental age seems to be sticking at a 3 year old level and he has just been given a statement of special needs (after 2 1/2 years).

my daughter alex is 3 years old, until she was 2 she was a perfect angel - so good and calm and happy. i was so happy she was so good because reece was such a force of nature he took up most of my time. she slept through the night from 5 weeks old, she progressed normally, she was happy hardly ever cried even when she should have been hungary.

when she turned 2, reece started 5 days a week at a nursery setting so i had more time for her. i though mmh shes 2 now she should be doing lots more than what she is. mainly talking - she baby babbled alot and said very few meaningful things. she wouldnt bother with toys or dolls just loved running from one side of the room to another (but she was so happy i didnt see it as a problem). we made a few games out of this runing so i could be included as she never seemed to be bothered about others. very in her own happy world. by the time 2 1/2 came we had been on a short hoilday in which she kept getting and out of the wardrobe for hours at a time in the hotel. she loved the beach but kept trying to run into the water past the tide. i started to worry then but pushed it out of my mind because she was so happy. i got her a place at nursery (same nursery that helped me with reece) they picked up on the problem when they came for a home visit. my daughter didnt even look at her when she came.

now she is delayed in all areas she is at 1 - 18 month level and 8 months on somethings. i signed all the paper work for her statement to go in and it was agreed to be invesigated after 2 days.

my main worry is the future, i cant safely take all my children out on my own. reece and alex do not understand danger, my daughter doesnt feel much pain or she cant express it - she had 2 teeth out in hospital just yesterday and was put to sleep. the second she came round she was up walking around like nothing had happened - no tiredness nothing. blood was everywhere but no bother to her she ate and drank.

i worry about the future and how i will cope with them both, im dying to get in a support group but noone seems to give any info. in exhausted all the time and dont have a life other than my children - that doesnt bother me im so lucky to have 3 special children and they are lovely so long as we keep to strict routines.

anyway thanks for letting me unload

hi my son is 16 in a week & after 8yrs of going to lots of differant doctors we have just found out that he has asperger syndrome & asd...we have no idea whats going to happen with him...he does not seem to care that he has these syndromes he just laughs at me when i try to talk to him,im at my wits end,the doctors are all saying that a autism nurse will be in touch soon(no idea when),ive had a look online but what ive read so far is very scary,i just wonderd if every1 on here has had these feelings & does it get any easier??

Hi,
I've just found out that my 6yr old daughter Lucy, might have ASD(High functioning) and Dyslexia. It has come as a complete shock and I didn't know the disorder existed. I'm just trying to take it all in reading up on all the information etc but there is so much and I'm not sure what to do nxt, my partner is devastated and it's hard to keep our morale up, we worry about her future. I feel a bit guilty too as it explains so much about her behaviour and I had been thinking I was just a bad mother and unable to cope! We don't have alot of support my parents are dead and Lucy just refuses to stay with a babysitter/rarely with family/friends. Lucy's school isn't really very helpful and I will never forget the way we were told she had a problem, she's currently on stage 1 of SEN. She is such a lovely,quirky and interesting child it breaks my heart that she doesn't hve friends and is having difficulties. I was just wondering if anyone has any advice on where to start in getting the help we need, Or handy tips on managing the behaviours? Tina.